Figure 2. An individual interview in Busia.
other words, this is a good place to test
for ‘impact’.
The purpose we set out for
ourselves was to look at how some of
the most marginalized people in Uganda
experienced exclusion tied to Ndaga
Muntu. For this report we chose to focus
on how this national ID system affected
access to the human right to health for
women and to the human right to social
security for older persons, especially
those living in poverty. Human rights
organizations have often focused on
concerns surrounding the impact of
digital ID systems on the human right to
privacy and data protection. While we
think that privacy and data protection
concerns are also very important
and significant in this context,60 we
believe that the cumulative impact
of this rather narrow focus has led
to an overemphasis on a particular set of concerns, often mostly approached from the
perspective of changes to regulatory frameworks. Inadvertently, this approach has implied
a false dichotomy between the supposed inclusionary benefits of digital ID systems versus
attendant negative impacts on the human right to privacy and data protection. What is
more, a focus on privacy and data protection concerns has sometimes, inadvertently, led
to the assumption that such concerns are ‘fixable’ relatively easily (via regulation).61
We focused on the social rights of the poorest and most marginalized, who
repeatedly indicated to us that access to their social rights was their primary concern. This
should not be read as implying that they did not care or should not care about their privacy
rights, but we highlight a very different and often neglected set of human rights concerns
that complements existing research and advocacy. What is more, by focusing on exclusion
from digital ID systems, we address a human rights concern that goes to the whole raison
d’être of digital ID systems according to its global promoters: the ability of these systems
to include and ‘leave no one behind’.
Fieldwork in Uganda was conducted by research teams from ISER and UW with
assistance from the Digital Welfare State and Human Rights Project at the Center for
Human Rights and Global Justice at NYU School of Law (DWS Project). We conducted
individual interviews and focus group discussions across six districts of Uganda as well as
in the capital of Kampala.62 Researchers explained the purpose of the interviews to each
interviewee and obtained their consent to use their information and images. When we
deemed a risk to certain individuals, we restricted use of identifying details and employed
pseudonyms to protect their identities. We spoke with at least 459 people, including 263
affected individuals, 162 hospital or health centre staff, and 34 local government officials.
During our research we not only conducted extensive fieldwork as indicated above,
22
Chased Away and Left to Die